Megan Barron, 22, has epidermolysis bullosa, a genetic skin condition that makes her skin extremely fragile and is often nicknamed "the butterfly disease," though it's not a disease.
http://abcnews.go.com/Health/butterfly-skin-condition-pain-triumph/story?id=18558903
http://abcnews.go.com/Health/butterfly-skin-condition-pain-triumph/story?id=18558903
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